KUWAIT (Reuters) – A young Japanese teenager who has endured an intense facial hair disorder that left him unable to sleep and unable to eat has become the centre of a worldwide campaign to help other sufferers.
Key points:Japan’s Yoko Ikeda has a condition called ruffle skirt syndrome that causes hair to grow out of control and leaves him unable in some cases to feed himself”The story of how I got to where I am today is not easy for me to explain.
I had no idea that I was one of the lucky ones.
I just didn’t know,” said Ikedas younger sister, who is also a fashion model and is also trying to raise awareness about the condition.”
I thought, I can’t look like this.
I thought I would never look this bad again.
But now, I’m in a great place, and I’m happy.”
A video posted on Instagram by her sister shows Ikeds hair growing out of his head, hairline protruding and the skin covering his face turning red.
“My hair has become so big, and it’s all in the head.
I can no longer control it.
I couldn’t sleep, I couldn, it’s so hard.
And the pain is really unbearable,” she said in a video message posted to Instagram on Thursday.”
In a moment like this, I just feel like I’m drowning in my hair.
My hair is very hot.
It’s hard to put a lid on it.”
In a video on her sister’s Instagram account, Ikedah says she cannot sleep at night, she cannot feed herself, and has nightmares.
She was diagnosed with ruffles skirt syndrome, or RSS, in April and has been taking medication since the first few days of her life.
The condition affects up to one in five Japanese men.
Its symptoms include extreme itching and burning in the face, skin problems and dry skin.
“The pain is so unbearable.
I’ve been living with it since I was nine years old.
I am so angry and I feel so sorry for all those people who are suffering from this,” Ikeday said.
She said she had a long road to recovery but that she was happy with where she was now.
“It’s so great to have a job, a house, and all the things I’ve always wanted.
I’m very proud of my family and friends who are supporting me,” she told Reuters.”
And I am happy because my life is going well now.
I know it’s not going to be the same.
I don’t want it to be.”
The story:The girl pictured is pictured with her father, a doctor at the University of Tokyo.
He told Reuters he is worried about her condition, but she has told him she is happy and is in good spirits.
“There is no way I am going to stop crying and I know that,” he said.
“She has been diagnosed with RSS but it is not life threatening.
I do not know how many times she will be tested for it, but we will try to find a solution soon.”
For now, the only thing we can do is to support her.
She is a miracle and she is very lucky.
“Ikeda, 24, has told Reuters she is trying to find the right treatment for her.”
Even if we could cure her, it would take a lot of time,” she wrote on her Facebook page.”
People are suffering and are going through all kinds of problems.
But I know we can all live with it.